Registered Charity No. 1166585
links
"A voice for families of children and young people with special educational needs and/or disabilities"  
 

 

Useful links

Local contact details
National contact details
Benefits Information
Carers Allowance

www.direct.gov.uk/

0845 608 4321

Disability Living Allowance

www.direct.gov.uk/

08457 123456

Motability

www.motability.co.uk/

0845 456 4566

Education

Connexions Berkshire - A charity which provides Information, Advice and Guidance for 13-19 year olds in Berkshire (and up to 25 years for those with special needs.

www.adviza.org.uk

0118 4027050

Information Advice and Support Service (IASS) - This is a confidential service which aims to promote partnership between parents of children with special educational needs and those who provide services that can support them.

www.readingiass.org
0118 937 3421

IPSEA – (Independent Parental Special Educational Advice)

www.ipsea.org.uk/

0800 0184016

Reading Borough Council - General Enquiries including parental hotline

www.reading.gov.uk/
0118 937 2265

SOS!SEN – The Independent Helpline for Special Educational Needs - We offer a free, friendly, independent and confidential telephone helpline for parents and others looking for information and advice on Special Educational Needs (SEN).

www.sossen.org.uk

020 8538 3731

Government Information
Portal to all government services www.gov.uk/

Reading Borough Council

www.reading.gov.uk/

0118 937 3737

Information Providers

ABLEize - The Berkshire section of ABLEize providing an ever growing list of disability and special needs groups, clubs and support services.

www.ableize.com

 

Berkshire Carers Hub - Carers Trust provides timely, personalised information and support via the Reading & West Berkshire Carers Hub to make caring for a loved one easier.

www.berkshirecarershub.org

 
0118 324 7333

Contact - the charity for families with disabled children. We support families with the best possible guidance and information. We bring families together to support each other. And we help families to campaign, volunteer and fundraise to improve life for themselves and others.

www.cafamily.org.uk/

0808 808 3555

CYPIT - Children and Young People’s Integrated Therapies are a team of occupational therapists, physiotherapists, speech and language therapists and dietitians. We support childrenand young people from birth up to age 19 acrossBerkshire, their families and schools to developchildren to their full potential and improve theirlife chances.

www.berkshirehealthcare.nhs.uk/cypittoolkits

0844 406 0979
Download pdf of leaflet

Local Offer – DISC (Family Information Service) - A free Information service for families who have a child or young person with a Learning Difficulty/Disability living in Reading. The service is individually tailored, providing information, advice and guidance.

www.reading.gov.uk/disc

localoffer@reading.gov.uk
0118 937 3777 (option 2)

Parenting Special Children - Supports parents in Berkshire who have children and young people with special needs from the point of diagnosis.

www.parentingspecialchildren.co.uk

07876275731

Safeguarding Adults Board - The Board covers the Local Authority areas of Reading, West Berkshire and Wokingham.

Safeguarding means looking out for and trying to protect others in our community who are vulnerable, or may be at risk of harm. If you think that someone is at risk, you need to raise an alarm. Everyone can make a difference.

www.sabberkshirewest.co.uk/

For further information Natalie.madden@reading.gov.uk

Sibs
Sibs is the only UK charity representing the needs of siblings of disabled people. Siblings have a lifelong need for information, they often experience social and emotional isolation, and have to cope with difficult situations.

www.sibs.org.uk

01535 645453

YoungSibs
For brothers and sistersof disabled children and adults.
Information for children and young people who have a brother or sister who is disabled, has special educational needs or a serious long-term condition.

www.youngsibs.org.uk

 
Download pdf of leaflet

Transport
National Rail Enquiries http://www.nationalrail.co.uk/

Reading Buses Customer Services Team
http://www.reading-buses.co.uk/
0118 959 4000
Back to top

Local and National Disability Contacts

Autism

Autism Berkshire - Supports those with autism, autism-related problems, Aspergers Syndrome and challenging behaviour.

www.autismberkshire.org.uk/

0118 959 4594

The National Autistic Society (NAS) - NAS are the leading UK charity for people with autism (including Asperger syndrome) and their families.

www.autism.org.uk/

0808 800 4104

Health
Cerebra
Cerebra is a unique charity set up to help improve the lives of children with brain related conditions through research, education and directly supporting the children and their carers.

www.cerebra.org.uk

01267 244 200

newlife
Newlife is the UK's largest charity funder of children's specialist disability equipment. We also run the UK's only national emergency equipment service, for terminally ill children.

www.newlifecharity.co.uk

0800 902 0095

Royal Berkshire Hospital

www.royalberkshire.nhs.uk/

0118 322 5111

Together for Short Lives
Together for Short Lives is the only charity working across the UK representing all children with life-limiting or life-threatening conditions and their families as well as the organisations and people that support them. We want to help ensure that all of these children and their families get the best possible care and support whenever and wherever they need it.

LawWorks is the operating name of the Solicitors Pro Bono Group.

www.lawworks.org.uk

0808 8088 100
Download pdf of leaflet

Hearing and Sight

Berkshire Vision

www.berkshirevision.org.uk

0118 987 2803

British Deaf Association - The BDA is the largest Deaf organisation in the UK that is run by Deaf people. We represent the Sign Language community, which is united by shared experiences, history and, most importantly, by British Sign Language (BSL).

www.bda.org.uk/

0207 405 0090

Guide Dogs UK - Provide mobility and freedom to blind and partially sighted people.

www.guidedogs.org.uk/


Reading Deaf Centre

http://readingdeafcentre.co.uk

0118 959 4969

RNIB - Supporting blind and partially sighted people.

www.rnib.org.uk

Sense - Is a national charity that supports and campaigns for children and adults who are deafblind.

www.sense.org.uk

0300 3309256


Learning Difficulties

Dingleys Promise - Dingley’s mission is to deliver life changing support to under 5’s with additional needs & disabilities and their families, by providing specialist learning through play; family support & training, and; advice to mainstream settings.

www.dingley.org.uk

0794 0259 355

National Mencap - Is the leading voice of learning disability. Everything they do is about valuing and supporting people with a learning disability, and their families and carers.

http://www.mencap.org.uk/

0808 808 1111

Reading Mencap - Provides information, support & services from diagnosis and throughout life for families of children and adults with learning difficulties and disabilities.

www.readingmencap.org.uk/

0118 966 2518

Physical Disabilities

Peapods - Local parent to parent support group for families with physically disabled children.

www.peapods.org.uk/

0118 961 6534

Muscular Dystrophy campaign - Focuses on Muscular Dystrophy and all allied disorders.

www.muscular-dystrophy.org/

0800 652 6352

Scope - Works with disabled people, of all ages, and their families, across England and Wales. They offer practical, everyday support and deliver campaigns that can change lives.

www.scope.org.uk/

0808 800 3333

Support for Black and Minority Ethnic Families

Alafia - Offers support, advice and information to carers of minority ethnic children and young adults with learning and physical disabilities, sensory needs and chronic illnesses (0-25).

www.acre-reading.org

0118 951 0279

INSAAN - Offers free support and advice and information to all individuals with disability, as well as parents, carers, teachers and healthcare professionals.

www.weareinsaan.org.uk

07414 162 631

Did you find what you were looking for?
If you require any information that is not listed, please email us using the membership page.

Back to top

Parent Carer Forums

for more information go to events ...

t: 07516 185380
e: fran.morgan.rff@gmail.com
 

© copyright Reading Families' Forum 2012